National Marfan Foundation

Washington-Baltimore Area Support Group

Updated 03/19/99

Betsy Gaffney 714 N. Jordan Street, Apt. 301 Alexandria, VA  22304 (703) 370-5203

Marfan Syndrome Information

Marfan syndrome is a genetic disorder of the connective tissue that can affect the skeletal system, eyes, lungs, blood vessels and heart. The National Marfan Foundation was founded in 1981 to provide accurate and timely information about the disorder to patients, family members and physicians; to serve as a resource for medical information and patient support; and to support and foster research.  For more information please visit the National Marfan Foundation Website.

Betsy's Letter March 1999

Betsy's Letter September 1998

New Stuff:

Connective Issue's Winter, 199

Marfan Walk, Sunday, June 13, 1999

and the 1999 Research Supplement. February 1, 199

Previous Newsletters:

Connective Issue's Late Spring / Early Summer 1998

The following are links to notes taken at previous meetings

UPDATED Meeting of the National Marfan Foundation Washington-Baltimore Area Support Group October 17, 1998

NIH MAP for October 17th Meeting

Meeting of the National Marfan Foundation Washington-Baltimore Area Support Group April 1998

Meeting of the National Marfan Foundation Washington-Baltimore Area Support Group October 18, 1997

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