Kelsey's Story
Kelsey's Page
Paula's Page
Poetry/Inspirational
International Rett
Syndrome Association |
I'm Paula, I'm 49, and I have 3 beautiful children, now ages 19, 13, and 11.
This picture is several years old, as it's difficult to get a good picture of all 3 of the kids together because
my middle child, Kelsey, has Rett Syndrome. The 'short' of RS is
that it is a neurologic, developmental disorder that is believed to affect
almost exclusively females. Its symptoms usually begin to manifest
themselves sometime during the 2nd year of life, and one of the main
hallmarks of RS is a 'hand-washing', wringing, clapping, tapping, or
hand-mouthing motion. For a much better and more thorough
description of RS, check out IRSA's (the International Rett Syndrome
Association) web site or the Rett Synrome Research Foundation's website at rsrf.com. For advocacy help contact me at Flowerpowerof3@cs.com

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By creating this
website, it is my hope that Rett Syndrome can more and more, be brought to
public attention - especially now that the GENE HAS BEEN FOUND - that
the researchers out there will look at a beautiful little girl like mine
and become interested enough to think that RS is an important disorder to
study and to *cure*.
visitors
have accessed this site since 10/18/99
Email
me
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