to our web site about our family and Rett Syndrome


Now playing: "Hands" by Jewel, read words here.

Kelsey's Story

Kelsey's Page

Paula's Page

Poetry/Inspirational

International Rett
Syndrome Association

I'm Paula, I'm 49, and I have 3 beautiful children, now ages 19, 13, and 11. This picture is several years old, as it's difficult to get a good picture of all 3 of the kids together because my middle child, Kelsey, has Rett Syndrome. The 'short' of RS is that it is a neurologic, developmental disorder that is believed to affect almost exclusively females. Its symptoms usually begin to manifest themselves sometime during the 2nd year of life, and one of the main hallmarks of RS is a 'hand-washing', wringing, clapping, tapping, or hand-mouthing motion. For a much better and more thorough description of RS, check out IRSA's (the International Rett Syndrome Association) web site or the Rett Synrome Research Foundation's website at rsrf.com. For advocacy help contact me at Flowerpowerof3@cs.com

By creating this website, it is my hope that Rett Syndrome can more and more, be brought to public attention - especially now that the GENE HAS BEEN FOUND - that the researchers out there will look at a beautiful little girl like mine and become interested enough to think that RS is an important disorder to study and to *cure*.

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Last Updated: 10/18/99
©1999 Leigh Ann Hawkins

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