Academic References Pertaining To

Muscular Dystrophy And Other Neuromuscular Diseases

American Academy of Pediatrics Committee on Children with Disabilities, & Committee on Psychosocial Aspects of Child and Family Health. (AAPC - CPACFH) (1993). Psychosocial risks of chronic health conditions in childhood and adolescence. Pediatrics, 92 (6), 876-883.

Annison, J., Jenkinson, J., Sparrow, W., & Bethune, E. (1996). Disability: a guide for heath professionals. Melbourne: Nelson ITP.

Bartalos, M. K. (1990). Muscular dystrophy: Assessing a diseased state. In L. I. Charash, R. E. Lovelace, C. F. Leach, A. H. Kutscher, R. J. Goldberg, & D. P. Roye (Eds.). (1990). Muscular Dystrophy and other neuromuscular diseases: Psychosocial issues. London: The Haworth Press.

Bauman,L. J., Coupey, S. M., Koeber, C, S., & Ellen, J. (1997). Teen Education and Employment Network. In G. W. Albee, P. Thomas. Primary prevention works. Issues in children’s and families lives, 6, (pp313-338). Thousand Oaks, CA; Sage Publications, Inc.

Berger, K. S. (1988). The developing person through the lifespan. New York: Worth Publishers Inc.

Berry, J. O., & Hardman, M. L. (1998). Lifespan perspectives on the family and disability. Needham Heights: Allyn and Bacon.

Boice, M. M. (1998). Chronic illness in adolescence. Adolescence, 33 (132), 927-939.

Canary, K. J., Stafford, L., House, K. S., & Wallace, L. A. (1993). An inductive analysis of relational maintenance strategies: comparisons among lovers, relatives, friends, and others. Communication Research Reports, 10, 5-14.

Emery, E. H. (1998). The muscular dystrophies. British Medical Journal, 317 (7164), 991-995.

Garrison, W. T. & McQuinston, S. (1989). Chronic illness during childhood and adolescence: psychological aspects. Newbury Park: Sage Publications.

Luft, P., & Koch, L. C. (1998). Transition of adolescents with chronic illness: overlooked needs and rehabilitation considerations. Journal of Vocational Rehabilitation, 10, 205-217.

McDonald, C. M., Abresch, R. T., Carter, G. T., Fowler, W. M., Johnson, E. R., Kilmer, D. D., & Sigford, B. J. (1995). Profiles of neuromuscular diseases: Duchenne muscular dystrophy. American Journal of Physical Medicine and Rehabilitation, 74 (5), 70-92.

Spirito, A., Stark, L. J., Gil, K. M., & Tyc, V. L. (1995). Coping with everyday and disease related stressors by chronically ill children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 34 (5), 283-288.

Verbrugge, L. M., & Jette, A. M. (1994). The disablement process. Social Science Medicine, 38 (1), 1-14.

Wassef, A,. Ingham, D., Collins, M. C., Mason, G. (1995). Defining the problem. (In Search of Effective Programs to Address Students' Emotional Distress and Behavioral Problems, part 1). A.adolescence, 30 (119), 523-539.

Wolfensberger, W. (1992). A brief introduction t social role valorization: a higher order concept for structuring human services (rev. ed.). Syracuse, NY: Training Institute for Human Service Planning, Leadership and Change Agenetry.